Category: Blog

Urge Congress to Continue the Money Follows the Person Program by Supporting the EMPOWER Care Act!

Money Follows the Person (MFP) is one of the longest-running, most successful Medicaid demonstrations. MFP was designed to help states transition people with disabilities from institutions into the community and to assist states in rebalancing their long-term services and supports systems to increase access to home and community-based services.

Since it began, 47 states have participated and over 75,000 people with disabilities have received assistance to leave institutions and move back home. Independent evaluations have proven MFP improves the quality of life for individuals and reduced Medicaid and Medicare expenditures by approximately 23%.

Unfortunately, MFP expired September 30, 2016, and states are running out of funding.

In New York, MFP funds the Open Doors Transition Center and Peer Outreach & Referral programs. Open Doors helps individuals living in nursing homes return to the community and assists individuals with developmental disabilities living in large group homes and institutions transition to smaller community settings or more integrated community programs. Since January 2015, Open Doors has assisted over 1800 individuals transition out of institutions and move back home! New York has committed to funding the Open Doors program through September 2019, however, we need to secure additional federal support to ensure the program is maintained beyond 2019!

The EMPOWER Care Act S. 2227 and H.R. 5306 would improve and extend the program for five years. So far, there are no New York Senators and Representatives on the bill. Help get New York to sign on as co-sponsors of the EMPOWER Care Act!

Act Now!

  • Call Senators Chuck Schumer and Gillibrand as well as your Representative and ask them to co-sponsor the EMPOWER Care Act today! You can reach them by calling the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY) and ask to be connected to your Senators or Representative.
  • Ask them to Co-Sponsor EMPOWER Care Act S.2227/H.R.5306 to extend the Money Follows the Person Program and pass it immediately.
  • Can’t call? You can also use Resistbot to turn texts into faxes, mail, or hand-delivered letters.
  • Spread the word: tweet and share this post on Facebook.

Talking Points

  • The Money Follows the Person Program brings people with disabilities and older adults back home to their communities.
  • The Money Follows the Person program gives people greater control over the lives.
  • It’s fiscally responsible! MFP improves the quality of life of individuals while saving states and the federal government Medicaid funding.
  • The program expired over a year ago. Without additional funding, states could scale back programs, potentially pulling the rug out from under the people who need it.
  • Talk about why this is important for you or someone you know, and the importance of the Open Doors program in New York. MFP frees people! MFP keeps families together!

Thanks to the New York State Independent Living Council for the details.

Support Funding for Independent Living Centers

We are thrilled that Representative Hanabusa (HI) sent a Dear Colleague letter to the entire House of Representatives. She asked them to join her in supporting an increase in funding for Independent Living Centers. Once signatures are received, Rep. Hanabusa will submit a letter to Chairman Cole (OK) and Ranking Member DeLauro (CT) of the House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies (L-HHS-Ed) to request increased funding for the Independent Living Program and donating some ergonomic desk and chairs in FY 2019. So far, Representatives Norton (DC) and Sablan (CNMI) have signed on.
 
We need to get as many supporters as possible by Wednesday, March 14, 2018!
 
Read the Dear Colleague letter from Representative Hanabusa and the text for the request to Chairman Cole and Ranking Member DeLauro.
 
Take Action!
 
The Independent Living Program is a vital, cost-effective program that has been underfunded for years. We need your help to get as many other Representatives as possible to sign-on! Contact your Representative TODAY and urge them to sign on to Representative Hanabusa’s Independent Living Appropriations request. Make sure your Rep. knows how vital the Independent Living Program is to you, and how much the CILs in their state do for their disabled constituents!
 
All Representatives can be reached by the Capitol Switchboard at (202) 224-3121 or (202) 224-3091 (TTY). You can find your Representative’s direct DC and local office numbers as well as other contact information at Contacting Congress. You can also use Resistbot to turn texts into faxes, mail, or hand-delivered letters.
 
H/T National Council on Independent Living
 
 

Act Now for Student Loan Protection

Did you know that you can receive relief on student loans if you have a disability?
 
Have you had an issue with your school loans? We want to hear from you!
 
We wrote a memo in support of the New York Student Loan Protection bill.
 
For people with disabilities, education is a way out of higher rates of poverty and higher rates of unemployment compared to people without disabilities.
 
When some people acquire an illness or disability or stop their studies due to their disability, they can receive relief on their student loans through Temporary or Permanent Disability Discharge.
 
However, many lenders or servicers don’t explain this option, even when they are aware of the reasons for stopping payment.
 
Article VII Budget Legislation, TED Part W, Subpart A would create a student loan ombudsman and require licensing of student loan servicing companies. California, Connecticut, Illinois, Washington, and Washington DC have already passed similar bills.
 
Please call your State Senator and urge them to support the provisions, as part of the budget agreement.
 
 

Fight the Dismantling of the Affordable Care Act (ACA)

The week of March 4th, New Yorkers for Accessible Health Coverage, a project of CIDNY, submitted comments to the US Department of Labor expressing strong concerns with a proposed rule expanding Association Health Plans.

We believe that the proposed changes would negatively impact access to quality, affordable care for consumers, disrupt the individual and small business marketplace, and further strain the limited resources of state regulators. The loosely affiliated small businesses joined together as AHPs would be exempt from many of the consumer protections created by the Affordable Care Act (ACA). These include insurance standards such as Essential Health Benefits, premium rating rules, and risk pooling. As was seen in the past with AHPs, fraud, abuse, and plan solvency present potential concerns, especially as oversight and regulatory authority remains in question.

We are particularly concerned that Association Health Plans will use various practices to discriminate on the basis of health status. This will segment the market, making the ACA-compliant market, that the people we serve now enjoy, into a high-risk pool that will become unaffordable to them.

Learn more about the impact of Association Health Plans here.